COLLABORATORS AND PARTNER ORGANIZATIONS
"If you want to go fast, go alone. If you want to go far, go together." - Proverb
"If you want to go fast, go alone. If you want to go far, go together." - Proverb
Oncotalk has been a remarkable collaboration between clinical teachers and leaders across the country, working to change the culture around clinical education and practice. Tony Back has been a conversation partner for me for over a decade and is always pushing us into new, more juicy areas of work and growth. He curates a cool tumblr for our new initiatives: http://vitaltalk.tumblr.com and on twitter: @vitaltalk.
All our teaching materials are freely available: http://depts.washington.edu/oncotalk/
All our teaching materials are freely available: http://depts.washington.edu/oncotalk/
In 2008, Jane Kaye of the HeLEX Center at Oxford convened a small group of people from around the world working on biobank governance. We had so much fun that we have met each year since in locations like Singapore, Banff, Rotterdam, and Montreal. Our Making Connections group thinks, writes, and supports each other in transformative biobanking governance practices. Our work has been supported by the Wellcome Trust, the Greenwall Foundation, and the generosity of other universities and colleagues.
Genetic Alliance is a consumer-based organization working to transform health and health research. I am privileged to serve as a Council Member and lead the Biotrust Ethics Team. Check out recent coverage of new initiatives in JAMA this month! On twitter: @geneticalliance
The Center for Ecogenetics and Environmental Health is engaged in top quality discovery sciences with toxicology, health effects of air exposure, seafood safety, and safety of nanomaterials. Funded by the NIEHS, we have a powerful Ethics and Outreach Core and have the privilege of working with many community partners on environmental health issues of concern and importance. We run a Public Health Cafe each quarter to encourage more community conversation on these issues. Follow us on twitter: @ecogenetix
I am part of the Ethics of Partnership Core within the Center for Genomics and Healthcare Equality, an NHGRI-funded Center of Excellence in ELSI Research. Our projects focus on what facilitates genuine partnership and collaboration, and how partnerships can advance translational research.
ELSI 2.0 Collaboratory is a culture change initiative working toward next-gen work in global genomics. We have members from France, South Africa, Nigeria, Japan, England, Canada, Germany, and growing.
More coming!
NEXT GENERATION SCHOLARS AND LEADERS
“All I can do-what I am called to do-is to plant myself at the gates of hope. Sometimes they come in; sometimes they walk by. But I stand there every day and I call out till my lungs are sore with calling, and beckon and urge them in toward beautiful life and love." - Victoria Stafford
“All I can do-what I am called to do-is to plant myself at the gates of hope. Sometimes they come in; sometimes they walk by. But I stand there every day and I call out till my lungs are sore with calling, and beckon and urge them in toward beautiful life and love." - Victoria Stafford
Alie Fohner: Alie is a doctoral student in the Public Health Genetics program at UW and works with me on issues related to community engagement and biobanking governance. She is interested in how to facilitate the dissemination of research results into programs and information for the public. Additionally, Alie wants to understand how people consider the information that genetic tests may provide to family members, and whether these implications should be considered in deciding whether or how to return actionable results to individuals as a result of genetic research done through biobanks. Other than these projects, Alie studies pharmacogenetics in underserved populations, volunteers at the Pacific Science Center, and explores the mountains within reach of Seattle. Check out her great website!
Lorelei Walker: Lorelei is a current PhD student in Public Health Genetics and has been working with us in the Center for Genomics and Healthcare Equality on a variety of key policy issues. Here is her latest research statement: "I am concerned with the impact bioactive chemicals, such as pesticides and other endocrine disruptors, found in our water sources have on fetal developmental and fetal origins of adult disease. Epigenetic mechanisms point to multigenerational outcomes from environmental exposures that merit tracking and study. Only though knowledge and awareness can society make decisions to mitigate harm".
Kate West: Kate is a PhD student at the University of Washington Institute for Public Health Genetics, and a staff researcher at the UW Center for Genomics and Healthcare Equality in the Department of Bioethics and Humanities. Her interdisciplinary work focuses on qualitative approaches to research into the ethical, legal and social implications of genomics research and technologies, especially as they impact American Indian and Alaska Native (AI/AN) communities. She hopes to work toward reducing health disparities in AI/AN communities through supporting food sovereignty and social justice efforts to ensure access to traditional foods that are safe and nutritious, and to do so with a community-based participatory research approach. More details and her latest blog posts can be found on her website!
As a special educator, Tara Coffin has worked primarily with children with Autism and other disabilities. Teaming up with young families seeking appropriate educational and health related interventions, genetics came into play again and again, whether through the potential for informing best practice, or communicating risks and results to concerned parents. These experiences highlighted a need to form a bridge, via effective and collaborative communication, between education, communities and genetic technology. In her doctoral study with the Institute for Public Health Genetics, Tara is looking forward to continuing her work with families and children with genetic conditions, offering support from the perspective of public health, as well as best practice in special education.
Alice Popejoy is a second-year Ph.D. student and National Science Foundation (NSF) Graduate Research Fellow. In her previous professional life, she worked in the CA State Senate, US House of Representatives, and public policy for the Association for Women in Science (AWIS) in Washington, DC. She hopes to build on her academic and professional background while enriching the field of Public Health Genetics and cultivating her skills in genomic methodologies. She is committed to keeping the lines of communication between science and policymakers as open and accessible as possible, while pursuing her academic interests in bioinformatics, data management, and access to genetic information. Alice has been very active working with the UW Graduate and Professional Student Senate to develop a science communication program aimed to support the professional development of graduate students.
Highlighting the amazing current and former students and postdocs I have the privilege of working with (more coming soon).